People with Blindness Can Read Again After Retinal Implant and Special Glasses
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Retinal ImplantBlindness TreatmentMedical Technology
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Retinal Implant
Blindness Treatment
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A new retinal implant and special glasses have enabled people with blindness to read again, sparking excitement and discussion about the technology's potential and limitations.
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Not that I would trust national TV test methodologies and risk my vision but it was a curious result.
To be clear, this is prescribed as a "we can't do anything else for you" thing, since there is no cure for RP. This may or may not actually help.
Advanced glycation end-product proteins or lipids that become glycated as a result of exposure to sugars
https://www.ncbi.nlm.nih.gov/books/NBK11888/
It isn't carrots.
Star Trek TNG is here!
https://en.wikipedia.org/wiki/Argus_retinal_prosthesis
It's annoying when software support ends for anything, phones, Nest Protect, (any Google product!), but I think best to bear it in mind in buying anything that it's a possibility, who are you relying on for what and what's their incentive to keep going.
Traditionally, if I buy a $500 dishwasher, the OEM is responsible for repairs under warranty. When the warranty lapses it'll still keep working perfectly fine, and if something breaks I can go to one of a dozen repair shops in my local area. Same if the manufacturer goes bankrupt: it'll keep working, and I can still get it repaired.
These days, if I buy a $500 tech product, it can turn into an expensive brick literally the next day, and there's nothing I could do about it. Even worse, it can happen because the OEM feels like it, not just because they went bankrupt! The fact that I own and possess the product has become completely meaningless, its fate is permanently in the hands of the manufacturer.
Somehow we've ended up with all the downsides of renting/leasing, and all the costs of purchasing. It'll only get worse unless we start punishing companies for behaving like this.
As an old post on usenix I liked (paraphrased) went “of course they shit on the floor, it’s a corporation, it’s what they do, the job of government is to be the rolled up newspaper applied to their nose when they do”.
That’s the fundamental problem, our governments don’t stand up to businesses enough when they should and roll over too easily when they shouldn’t.
The relationship is far too cosy at the top levels as well.
It is a reasonable argument for the regulatory state though - which is to say, delays to market from regulation could have reasonable origins - like requiring sustainment plans when you're going to do human implants which aren't removable. With the obvious counter-balance that the government and by extension the taxpayer should take on some of the risk if they truly want "rapid to market" development.
If you avoid that you have more freedom to operate as a corporation in China than in the US, of course in the US the corporations just buy sorry lobby the politicians.
It used to be much more understated than it has been recently though, that they’ve pulled the mask off more over time suggests they think they can get away it.
Interesting times.
Occurs to me there was actually a Black Mirror episode on basically this in the latest season - not sight exactly, but a neurological implant of some kind. (Jacking subscription fees, removing features, etc., with real-world consequence.)
https://spectrum.ieee.org/bionic-eye-obsolete
This case is very infamous in the disability & tech academic research community -- kind of their version of the Therac-25 in terms of ethics, damage to people, etc.
The most expensive IT failure in our governments history was healthcare related.
https://en.wikipedia.org/wiki/NHS_Connecting_for_Health
It's typically $10-$50 per visit. Maxes out at $130 per year.
This probably weeds out a lot of frivolous visits and keeps the system healthy.
Blind people in my family rely on proprietary software for dealing with visual impairments. It's painful and offensive how exploitative these tools often are. The thought of installing something by a similar company into one's body is frankly dystopian.
I would gladly pay big money for proprietary tools if it means regaining some of my sight until libre options exist. Looking at the rather sorry state of accessibility on libre software, I'll be dead and buried before the first digital eyeball with free software comes out.
> Second Sight merged with Nano Precision Medical in August 2023 with a commitment to provide technical support for the Argus II
Maybe you're alluding to something more than is mentioned in that article, did they not fulfill their commitment to provide the technical support in the end?
If they did not fulfill their commitment continuously, it's messed up.
- devices are not OSHW (and didn't comment on the new OSHWA open healtware initiative) - implants don't actually have firmware or even battery - devices connected to implants rely on their protocol Synapse https://github.com/sciencecorp/synapse-api
So... arguably they haven't taken a positive stance on the topic IMHO but assuming the situation is as they describe (kind of an advanced mirror in the body connected to smarter stuff outside but that one could replace) it's not as terrible as others mentioned e.g. in the IEEE Spectrum article.
Disclaimer: I am blind myself.
I am not blind nor deaf etc., but I am frankly fed up with it. In my case, should I call myself "a person with programming, Czechness and fortysomething years"?
Nope, I am a middle-aged Czech programmer. Yes, that does not reflect my entire personality and humanity. So what. Better than this sort of language abuse.
But I'm sure basically any word has been used as an insult in some context, that doesn't mean it's useful to consider all such usage as such.
If you're neither a bigot nor a member of a minority group, you're unlikely to be familiar with the slurs used against members of that group. And, of course, different cultures have different slurs. The fact we've never observed these words being used as slurs doesn't mean they aren't predominately used that way, in certain cultures.
From https://en.wikipedia.org/wiki/Deaf-mute
you have
> Some consider it to be a derogatory term if used outside its historical context; the preferred term today is simply deaf.[2]
which refers to
Moore, Matthew S. & Levitan, Linda (2003). For Hearing People Only, Answers to Some of the Most Commonly Asked Questions About the Deaf Community, its Culture, and the "Deaf Reality", Rochester, New York: Deaf Life Press
and I am not reading that or considering it authoritative.
From 2nd ed OED you have,
deaf-mute, a., n. [After F. sourd-muet.] a. Deaf and dumb. b. One who is deaf and dumb.
1837 Penny Cycl. VIII. 322/2 s.v. Deaf and Dumb, In all these conditions of deafness, the person is consequently mute, or dumb. Hence the expression Deaf-Mute, as used in the continental languages, and Deaf and Dumb, as used in England and America. 1865 New Syd. Soc. Year-Bk. for 1864. 479 A deaf-mute child. 1881 H. James Portr. Lady xxv, He might as well address her in the deaf-mute's alphabet.
Hence ˈdeaf-ˈmuteness, ˈdeaf-ˈmutism, the condition of a deaf-mute.
1874 H. R. Reynolds John Bapt, ii. 109 The deaf-muteness of Zacharias. 1865 New Syd. Soc. Year-Bk. for 1864. 318 Congenital deaf-mutism. 1874 Roosa Dis. Ear 515 Deaf-muteism is caused by diseases of the middle and internal ears. 1884 A. J. Ellis in Athenæum 12 Jan. 55/2 This art [of lip-reading], the keystone of the modern bridge from deaf-mutism to deaf sociality.
which doesn’t indicate derogatory.
Plus I have never heard it used in a derogatory manner. Also from an argument or debate perspective, when stating something improbable, you should not be asking people to prove improbable things wrong and instead should be showing the proof of improbable things yourself
> In informal American English the term dumb is sometimes used to refer to other hearing people in jest, to chide, or to invoke an image of someone who refuses to employ common sense or who is unreliable.[9] In the past deaf-mute was used to describe deaf people who used sign language, but in modern times, the term is frequently viewed today as offensive and inaccurate.[10]
I have shown all of the evidence available to me. “I am not reading that or considering it authoritative.” is not a counterargument.
> From 2nd ed OED you have,
The 2nd edition of the OED is not paywalled. (It also has several methodological issues: https://oed.hertford.ox.ac.uk/oed-editions/oed2/) The Wikipedia article references the paywalled online edition, which is probably the 3rd edition entry. All of this information was available to you. Please do not accuse me of "just making things up" without at least checking.
Not worth listening (ha!) to them and things like Wikipedia are just an outcome of their pressure campaigns.
i.e, people with a condition that leads to blindness, full or partial.
A car person would be some kind of car person hybrid if you read it literally. Car person is acting as a short hand for "Car obsessed person." Car is a noun, blind is an adjective, etc...
Do you have the same objection to, say, “visually impaired” if a person is trying to talk about all people with various vision problems, up to being fully blind?
If those are unacceptable, what would you use in that case?
My gf (blind herself) recently met a teacher on a train, who told her she is working with her class to find a new word to replace "disabled". IMO, just so that she doesn't have to deal with reality. And, mind you, no disabled person around... It is just sad what some people are doing on "behalf of us", just so they don't have to grapple with the fact that some people have a harsh life.
It is hard to explain the sadness, as I also have a language barrier, english being my second language. However, believe me, I virtually know no disabled person who likes these language games. If we are amongst each other, we all agree this patronising is sad and should stop.
I find this very frustrating. Most of the time it seems that people who do this sort of thing haven't even talked to a disabled person and asked what language offends them or makes them feel bad.
> just so they don't have to grapple with the fact that some people have a harsh life.
The cynical part of me thinks that often it's not even this; it's just virtue signaling.
With certain white people though, you really need to watch your words.
Is there really an "obsession"? Also, while I don't deny there's some discussion here, I think you really have to squint to read the title in such a way.
In any case, I ... really don't care. As another commenter says, there are other, bigger, more important hills to die on than getting worked up about people trying to be more inclusive with their language.
Does it take anything away from me or minimize my disability when I'm referred to as a "blind person" vs a "person with blindness"? Not at all. So why does it matter?
And to be honest, I've never once met a blind person (or autistic person) who actually cares about this type of wording. I think this is one of those battles being fought by the extremes on either side, and it's frustrating and exhausting for everyone else, because it's a distraction from the real issues. And you can see this right in this comment!
> I am not blind nor deaf etc., but I am frankly fed up with it.
You're "frankly fed up" with something that barely affects you at all. Why?
There's somewhat of a debate about it throughout the European eastern block. Policing language is somewhat of a touchy topic around here.
Personally I much more often stop saying certain things than start using some expressions - they typically age badly.
Not sure that specific phrase is an obsession, but I hear a lot of language-police-type people who try to shame others into changing some phrases like this. The one I hear most often where I live is to use "person experiencing homelessness" rather than "homeless person", the idea being to not to consider "homeless" as a part of their identity, but to acknowledge that it's a (hopefully) temporary situation they have found themselves in.
I get what people are trying to do here, but I think it's unnecessary, and just increases people's cognitive load and adds verbosity to expression. And gives disingenuous people more ammunition to derail discussions. And as you say, it seems like most of the people pushing for things like this haven't even talked to a blind/disabled/homeless person to ask what language offends them. I don't know any blind people, but the people I've talked to with various disabilities had no issues with being called "disabled".
> You're "frankly fed up" with something that barely affects you at all. Why?
Not the person you're replying to, but I assume the problem is that other people often shame or "correct" them when they use the "wrong" terminology, which is not only annoying, but can even cause real-world problems (e.g.: use the "wrong" term at work and maybe your career prospects get worse).
First, this is often forced on people from the above. I don't like the idea of language coercion, doubly so for ideological reasons. Imagine that BBC journalists were forced to include Allah or some nationalist tropes in their work in order to increase piousness and patriotism of their readers; to some people, this actually sounds like a good idea! I don't believe you would wave it away easily.
Orwell described this well with his "Ministry of Truth". BBC (from which this article comes) isn't a ministry, but isn't a private subject either.
Second, can you think about the long term consequences? Just look around at the sorry state of Western politics and Western online discourse.
Language is one of the few cultural commons that remains. There is no chance that stuff like "people with blindness" or "LatinX" will universally prevail. Too many people react to it negatively, including in the young generation. We run a real risk of the left and the right developing mutually incomprehensible languages, which would be a disaster - once that happens, the polarization will be cemented in, because swing voters would have to be bilingual.
I've seen the split of Czechoslovakia myself, and Czech and Slovak aren't even mutually incomprehensible. Just far enough to remind the people that they are very different from each other.
Third, this construct is extremely impractical. One of the actual observations of Chomsky is that natural languages are good at chaining things. For example, you can easily talk about poor blind homeless black people. Once you enter this rabbit hole fully, you have people of color with blindness experiencing poverty and unhousedness. This is just not a reasonable way to communicate and this is also my main hope that this abomination dies out. (It reminds me of Old Norse kennings [0], but those were an art form and never considered to be an actual language of communication.)
Again, see Orwell and his newspeak (Oldthinkers unbellyfeel Ingsoc.) Orwell wrote his dystopias based on experience with the English intellectual far left, and it seems that those ideas live on.
===============================
Summed together, to start all this while the actual blind people DGAF, as you yourself say, is at best an experiment in futility and at worst throwing more ** into the fan that has us already deeply covered in **.
[0] https://en.wikipedia.org/wiki/Kenning
The (foolish) idea was that the word "blind" has a negative charge, so if we replace it with another word the stigma will go away, and blind people can feel better.
But of course, any stigma comes from the blindness itself. Any replacement term will get the same stigma, and will then need to be replaced.
Stephen Pinker called it "The Euphemism Treadmill" in 1994, and that term has never been replaced: https://stevenpinker.com/files/pinker/files/1994_04_03_newyo...
The actual reasoning is putting the people first, not their disability.
https://en.wikipedia.org/wiki/People-first_language
In my community we refer to non-blind people as “sighted” which I suppose is also a spectrum.
Blind is very descriptive, and in my opinion not derogatory. I’d rather it not be my primary differentiator or descriptor unless comparing me to virtually identical people who have full or near full vision. “The blind engineer on the team” is ok with me as it’s the fastest way to describe me if we’re all middle aged guys with beards. If I’m the only bearded guy on the team of middle aged engineers I’d prefer “the engineer with a beard”
The homeless/houseless stuff usually sticks out to me, but I guess "people with blindness" didn't sound that weird. It also sounds less strict, like saying you're blind makes me think so sight at all, "legally blind" as I sometimes hear would make me think hardly any sight. Being "with blindness" to me could mean something more partial, more of a spectrum. It also sounds more like we might say someone has IBS or diabetes, not that they are those things.
Perhaps blind/deaf/dumb and the like are archaic terms because even with very primitive medical technology you could diagnose these things, so we've got much older records about them. I am not bothered by any of these terms, but I'm also not blind, nor a person with blindness, heh.
Windows: Definitely NVDA (github.com/nvaccess/nvda) Linux: AT-SPI, ATK, Orca for the graphical side of things. The console/terminal is pretty well supported.
[1]: In both senses of the word.
so that means it sucks
So now he is in pure blindness, I can feel the pain. He comes from China.
I hope there will be a process can help him to see things again!
If anyone knows sth, please tell me!
They didn’t really demonstrate that patients without the implant had worse vision. You could argue that with the magnifying glasses themselves that patients could improve their vision without surgery. So it will be up to a future study to determine this.
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