Fragmented Medical Records Delayed Treatment for Months
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The author shares a personal experience of fragmented medical records causing treatment delays and proposes a solution to store health records in an encrypted vault, allowing users to control access and get incentivized.
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Oct 31, 2025 at 10:59 PM EDT
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This is a very challenging and important problem. I encourage to keep working on it.
Step 1: Ask for, and obtain your medical records from your providers.
Step 2: Once you have your medical records in your possession, keep them organized, and share them with whoever you want, whenever you want.
I just keep them like one directory per doctor/provider, and dated filenames like dr-foo/2023-02-24-chest-xray.pdf or whatever.
Patients have an absolute right to their medical records, test results, with very few exceptions. It is _not_ hard to get access, just ask, and if you have any trouble, talk to whoever hands out and takes away the medical licenses in that jurisdiction.
If you have all your records, its easy to switch providers whenever you want, get second opinions, and do your own research. It can be pretty interesting seeing the raw notes from doctors, getting the DICOM files for x-rays/ct/mri imaging too.
Just keep, and take responsibility for your own data, it is not realistic to expect providers, the government, or any business to do this for you.